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in the middle

Tonight when I went to kiss my Asher at bedtime, he stopped me and said, No. Your nose. I want to kiss your nose. So I moved my nose closer and his little five year old lips found their way and...

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Savannah Spreads Holiday ‘Cheer’ Before Brain Surgery

Today, after months of planning, Savannah Day (pictured above in the middle) and her sisters finally got to see all of their hard work pay off. All in one place, in a super-sized mound of toys. When...

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10 Tips for Parents of Kids with Chiari Malformation

In late 2006 when he was 4 years old, my son Matthew was diagnosed with Chiari malformation. With this condition, the back of the brain goes down below the base of the skull and into the upper spinal...

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Chiari Malformation: Before and After Decompression Surgery

I have two sons who have Chiari malformation. What a ride we have been on with this condition. Jacob, now 15, was diagnosed at 14 months old. Dylan, 12, was diagnosed at 10 months old. A Chiari...

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